What a day! Kallia was in pain from her LP all day. And it took her over 3 hours to take all of her medicines this morning. My goodness she hates to take medicines. They are all liquids. She had 6 to take this morning. I guess that averages one every 30 minutes? We try everything and in the end no amount of tricks, bribing, rewards, etc will do. Sometimes she just has to be held down and they are squeezed into her mouth and she just has to swallow. It's sad. And emotionally draining. I think both Steve and I are at the end of trying to be patient. We need a new strategy to be prepared for the evening medicines.
We didn't give her her big pain meds today because they make her hyper and awake. Just Tylenol because she is tired and needs to sleep. But boy has it made her grumpy and angry and miserable. This was one of the most difficult days yet as far as her being angry and unhappy about it all.
She said "This is my body not theirs and they are destroying me!" Well, actually they are destroying it but in a good way! That's hard to explain to a 6 year old.
So bedtime meds were much better. Steve was more firm with her about having to force them down her and she took them all in 15 mins. It sounds harsh but what do you do when your child literally has to take them or they die?
She was asleep by 8:00 thankfully. She was so exhausted. It wears a kid out to fight to not take your medicines all day long!!!
Her foods of choice today were bowls of taco soup for breakfast, lunch, and snack! And she hasn't stopped eating garlic bread since she got home! She eats a loaf of garlic bread a day! We are told that's the meds doing that. Our whole house smells like garlic! I guess she's preparing for Halloween. No vampires here!!
I'm so glad to hear that Monday went well and she was able to come home! Remember, don't hesitate to call if you need to get out of the house and need someone to sit with her.
ReplyDeletePraying for strength for you all. What a hard thing for such a small girl to have to learn...the whole doing very painful things and taking awful tasting medicines in order to get better. :( Sucks!
ReplyDeleteSorry about the icky meds Kallia :( **HUGS**
ReplyDeleteI can't even get my 9-yr-old to take a dose of cough medicine! She'd rather be miserable. I can't imagine having to get everything down her that Kallia is taking. Yes, you just have to force her. Hopefully she will accept that part of this sometime soon. Go Kallia! Hope y'all get the eating/appetite worked out soon to where she can be satisfied but not do such a bad number on her system. Will pray for all these things.
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