Next came the EKG. Thankfully her heart is in good shape.
Then Kallia had a visit from a good family friend Carissa Robinson. She brought some fun things for Kallia to do while sitting around!
Next was poking for the parents! The research team came in and took Steve and I's blood for genetic research. If they find out which of us is a carrier they will notify us and probably one of us will be fired from being a parent!!!
First dad went!
Then mom! Mom was for sure she would pass out but if her 6 year old daughter can do it over and over then I guess she can too!!!!!
After poking it was time to try and get Kallia to eat something. Luckily Chick-fil-a came to the rescue and she actually ate some chicken nuggets! But who can resist Chick-fil-a???
Our social worker came and talked to us for a while about the ins and outs of the hospital, bills, expectations of children with life-threatening diseases. Happy, happy, happy. :)
Samantha and Talon Walker also came to visit. And Liberty was lucky enough to miss school and spend the day with her sister.
If anyone thinks we get to sit around and read books think again!!! After Liberty left with Steve, Alaina and her cousins came to visit. The 3 girls had lots of fun playing, drawing, and having a rainbow cupcake party!
And that was the end of visitors! Whew. Next came the hard part. Taking medicines. For an hour and a half Kallia cried, screamed, squirted, and threw medicine. In the end, all 3 syringes of meds went down her throat. So did mom's ability to hold back the tears. 3 times a day at this isn't going to be fun. Kallia has something I call highly-sensitive-over-active-mouth-and-nose-sensory-make-me-gag-on-anything-nasty-I-smell-and-taste syndrome. She has 3, yes 3, Glade/Febreeze/Wallflower scents in her bathroom here and she still gags when she uses the bathroom. And it's only getting worse with these drugs! Oh boy!
And the doctors all tell us the steroids she has to be on make kids overly moody and grumpy. Really? Because I thought she was already like that!
And while ALL of this was going on at the hospital......a swarm of worker bees from our church descended upon our back yard and cleaned it up. Steve's back has had a bulging disc since January and has made it very difficult for him to keep up his garden and fruit trees like he usually does. But our amazing neighborhood came to the rescue. It's hard not to feel overwhelming gratitude when someone texts you pictures like these!!!
I mean really!!!! Who does this but the MOST amazing people in the world???? We love you all!!!
But the biggest joy of the day is that this is the FIRST day in 4 weeks that Kallia has not had a fever of 102! That means some kind of cancer is being kicked in there!!!!!
Go Kallia! We love you!!!
After poking it was time to try and get Kallia to eat something. Luckily Chick-fil-a came to the rescue and she actually ate some chicken nuggets! But who can resist Chick-fil-a???
Our social worker came and talked to us for a while about the ins and outs of the hospital, bills, expectations of children with life-threatening diseases. Happy, happy, happy. :)
Samantha and Talon Walker also came to visit. And Liberty was lucky enough to miss school and spend the day with her sister.
And the doctors all tell us the steroids she has to be on make kids overly moody and grumpy. Really? Because I thought she was already like that!
And while ALL of this was going on at the hospital......a swarm of worker bees from our church descended upon our back yard and cleaned it up. Steve's back has had a bulging disc since January and has made it very difficult for him to keep up his garden and fruit trees like he usually does. But our amazing neighborhood came to the rescue. It's hard not to feel overwhelming gratitude when someone texts you pictures like these!!!
But the biggest joy of the day is that this is the FIRST day in 4 weeks that Kallia has not had a fever of 102! That means some kind of cancer is being kicked in there!!!!!
Go Kallia! We love you!!!
Yay for no fevers! Keep kicking it Kallia!
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